Autism Support For An Adult

When a woman finds out she is pregnant, there is a dream that she subscribes to. Each of our dreams are different, but we have them. We hold onto those dreams until something forces us to let go. Some of the families I have the honor to work with are going through the “letting go” process. They are saying goodbye to what they thought would be, and opening the door to a new reality.

One of the struggles parents of children on the autism spectrum face, is finding support services. These services are generally not covered by insurance, incredibly expensive, difficult to get into, and sometimes just plain obsolete. I am currently working with a family whose adult daughter is struggling to find a path that will accommodate her needs and fulfill her dreams.

The first step we are taking is to look into the state run programs. Those programs can be difficult to get into, and often times financial support is based upon the income of the family. In this case, the adult child is old enough to no longer be considered a dependent, and therefore may receive some services that she would not have ten years ago. At a bare minimum, these state programs provide support staff who know their stuff. They know the laws and are able to direct families towards seeking fair treatment in educational settings, job placement, and all other aspects of life. Sometimes it’s just nice to know that someone is there and willing to hold your hand and walk you through the tough moments.

The next step is to ask the experts we are working with to give referrals for different programs in the area. I am new to the state I live in, and so I am always looking for success stories involving any local service providers. We were lucky enough to find that the local community college has just adopted a program specifically for individuals who struggle with the issues found within an autism diagnosis. This program provides great support for their students. Everything within the academic program nurtures the strengths, and supports the weaknesses that each student brings to the table.

We are currently looking for an assisted group living scenario. I am hoping to find an option for the family, as they are truly hoping to see their daughter live independently and successfully. This is definitely not the case for all families. Many want to keep their loved ones in the home. In this particular situation, the adult child is a very high functioning individual and could successfully live on her own with the proper support systems in place.

We are also looking for support systems for the family as they go through this transition. I don’t want them to make rash decisions as they watch their daughter and sister struggle to find her way as an independent adult. It is hard to step back and allow your child to face challenges without stepping in to lighten the load. But it is incredibly important that the family has a professional on their side to talk out their fears, joys, and any future needs they will face.

I will update this post as we get this sweet family on the path they are seeking.

The top three places to start a search for support services:

1. Vocational Rehabilitation: this is generally a government funded program with individuals who have fabulous training and are prepared to provide extensive support for anyone who is looking for work and has a documented disability.
2. Community Colleges: Contact the disability resource center of your local community college and ask to speak with the director. These folks are very aware of what resources are available within the community.
3. Google local support groups for the issue you are looking to address. The absolute best place to find good information is from others who are working through similar issues.