I was recently asked to teach a class on Autism at the Frisco Library. I can’t even begin to put into words how excited I was to teach on a subject I am so passionate about. I was asked about six months in advance to go ahead and prepare for the presentation, and it was an amazing learning experience.
I chose the subject “Resources Available to Families Impacted by Autism.” I had learned the systems out in Arizona, where I got my M.Ed., so I was excited to learn as much as I could about the Texas options. Parents of children on the autism spectrum often times know these systems quite well by the time their child has reached the five year “post diagnosis” mark. But those first five years are an absolute struggle to learn the system and begin to understand what resources are available to the family and child.
In Texas, there are two lists any family wants to jump on immediately. If you suspect your child may be on the spectrum or that your child may have a significant delay, the first place you want to go is to the Early Childhood Intervention (ECI) program in your area. In Frisco Texas, where I taught the class, that program is Lifepath Systems. These are the people who deal with all ECI cases, or birth to 3 years of age. The second list is the Department of Assistive Rehabilitative Services or DARS. You can read more about this program at http://www.dars.state.tx.us,and should make any inquiries at 1-800-628-5115.
The first step a parent must take is to call the referral line and fill out the paperwork to refer their child to the Lifepath Systems. You can find more information on Lifepath at www.lifepathsystems.org, and should contact an eligibility specialist at 972-727-9133. By law, the intake, screening, evaluation and assessment must be done, and your individualized family service plan meeting must be held within a 45 day timeframe from the date of your referral. Delivery of services must begin within 28 days of that service plan meeting, and then you can expect a review of services and every six months. The child is then discharged from the ECI program by the age of three.
DARS has a special program just for autism that was launched in 2008 and is up for review August of 2015. They offer services for kids ages 3 to 15 who are on the autism spectrum. If you qualify for the program, the services include Applied Behavioral Analysis or ABA training. The entire family will be involved in this process, as consistency is key to long-term success.
The next step is to get your child into the early childhood school in your area. FISD has a fantastic school for kids who are receiving services from Lifepath Systems. That program only lasts to the age of five, and then your child will move into the public school system where services are provided by the ISD that you are a part of. FISD has a bunch of services that they have worked hard to develop. Along with the standard support the child receives, FISD has created some amazing family programs. Their programs include parent in-home training, sibshops, and even a resource room designed just for the parents of these special kiddos. This room is equipped with books on all sorts of methods for dealing with issues associated with developmental delays, behavioral disorders and just about anything else parents may have questions about.
Once the child exits the public school system, the next step is DARS. This is the government program that was put in place to meet the needs of adults who have documented disabilities. These disabilities range from head trauma injuries to emotional disabilities, and they cover everything in between. DARS will provide the client with a specialist who will guide the family and the individual through the process of finding ways to help that individual live a productive and fulfilling life. Their support options include financial support for secondary education, training in a trade, employment support services, and support for day to day living needs. This group may be a part of your child’s life for a long time, and it is important to know what they offer and what your child qualifies for.
I know this is the short explanation of some of the steps that should be taken. These are by no means the only options available to families dealing with autism, but they are starting points for those who feel lost. If you do not live in the Dallas area, you can find the equivalent programs in your area by googling “government resources for individuals with disabilities.” Then search out the programs based on the age of your child and on their individual needs. There are a lot of resources available, but not nearly as many as we need. Find what works for you and your family, and then share what you learn with others. We are all here to support each other.